AUSTRIA

EDS Ehlers Danlos Syndrom Support Group
Sechsschimmelgasse 25/13
1090 Vienna
Austria
Hannes Tannich
wuermchen39@gmx.at
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

BELGIUM

Belgium EDS Support Group
Sint Laurentinslaan 54
9041 Oostaker
Mrs Claudine Waelput
eds.vl@skynet.be
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

Groupe d'Entraide des syndromes d'Ehlers-Danlos
25 rue de la Motte
B-1399 Archennes
Mme Ute Costermans
jacques.costermans@swing.be
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

DENMARK

The Danish Ehlers-Danlos Society
Kasserer: lizzy h. Jensen
Dybbolvij 14
9900 Frederikshaun
Chairman: Lykke Rehder
Ellemosevej 50
DK - 2900 Hellerup
lykkerhder@tdcadsl.dk
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

FINLAND

The Finish Rheumatism Association
Iso Roobertinkatu 20 - 22 A
FIN-00120 Herìlsinki
Jaana Hirvonen
iaana.irvonen@reumaliitto.fi
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
FIN-00520 Helsinki
Finland 
harvinaiset.ihosairaudet@iholiitto.fi 
Website: www.iholiitto.fi 

FRANCE

Cutis Laxa Internationale
35 Route Des Chaignes
17740 Sainte Marie De Ré
France
Marie-Claude Boiteux 
Mcjlboiteux@Aol.Com 
Website: www.orpha.net/nestasso/cutislax 
Note: this association is primarily intended for patients affected by Cutis Laxa.

Ehlers Danlos Syndrome Association
34 rue Léon Joulin
37000 Tours
France
Marie-Noëlle Gaveau-Glantin 
marienoelgaveau@aol.com 
Website: www.afsed.com 
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

GERMANY

Deutsche Ehlers-Danlos Iniziative e. V.
Grauthoffweg 78
D-33758 Schloss Holte-Stukenbrock
Johanna et Gilles Guénot
guenot@aol.com
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

IRELAND

Ehlers-Danlos Sindrome Support Group-Ireland
24 Wendell avenue
Portmarnock Co Dublin
Betty et David Rea
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

ITALY

A.I.S.E.D. - Associazione Italiana per la Sindrome di Ehlers-Danlos
Dipartimento di Biochimica
Via Taramelli 3B
I-27100 Pavia
Sig.ra Maurizia Valli
dbioc@unipv.it
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello 
info@lemalattierare.org 
Website: www.lemalattierare.org 

NORWAY

Leder Norsk Forening for Ehlers-Danlos Syndrome
Postboks 4568 Nydalen
NO 0404 Oslo
Norway
Mr. Kristen L. Skogrand
Eva Melsaeter
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

SPAIN

AASH
Pza Carme Monturiol n. 3, 4°-3°
08036 Barcelona
Spain
Dolores Mayan-Cendron
doloresmayan@hotmail.com
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

SWEDEN

Ehlers-Danlos Sindrome Riksforbund
Bjorkvagen 77
S-14733 Tumba
Chairman, Mrs Britta Berglund
Britta.berglund@karolinsbra.se
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

THE NETHERLANDS

V.E.D.
Stationsplein 6
3818 Le Amersfoort
President: Margrieth Veenhuizen
Jaap Smit
jrsmit@zonnet.nl
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).

UNITED KINGDOM

Ehlers-Danlos Support Group
PO Box 337
Aldershot GU12 6LJ
United Kingdom
Libby Godden 
director@ehlers-danlos.org 
Website: www.ehlers-danlos.org 
Note: this association is primarily intended for patients affected by Ehlers-Danlos syndrome(s).