The GENESKIN website is part of the GENESKIN project which was supported by EU FP6 funding. This publication contains information about rare genetic skin diseases that we believe might be of interest to patients, family members and health care professionals. The website is under the responsibility of the project participants which all have expertise in these diseases. Its objective is to disseminate information, but not to be a substitute for consultation of healthcare professional. The user thereof utilizes the information at its sole risk and liability. The authors strive to ensure that the contents are correct and up-to-date. However, administrator and GENESKIN participants can not guarantee the accuracy or timeliness of information and can not be held responsible for any omission. If you are aware that any of the information here contains mistakes or needs updating, please tell us. The authors cannot be held responsible for harmful, truncated or erroneous use of any information found on this website. Links to external websites are provided for users convenience. The GENESKIN website does not endorse, control, monitor, or guarantee the information contained in any external website. GENESKIN does not accept any responsibility for any loss, disruption or damage to your data or your computer system which may occur whilst using material derived from this website. GENESKIN does not warrant that the functions contained in the material in this site will be uninterrupted or error free. All the material published on the GENESKIN website is copyright protected. No part or elements of this website can be used for commercial purposes without written consent.