FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
FIN-00520 Helsinki
Finland 
harvinaiset.ihosairaudet@iholiitto.fi 
Website: www.iholiitto.fi 

ITALY

A.N.D.E. Associazione Nazionale Displasia Ectodermica
Via Cascina Fidelina, 19
20061 Carugate (MI)
Italia
Giulia Fedele Kleemann 
segreteria@assoande.it 
Website: http://www.assoande.it 

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello 
info@lemalattierare.org 
Website: www.lemalattierare.org 

NETHERLAND

Ectodermal Dysplasia Netherlands
Aernout Drostkade 30                                                                             
Gouda                
The Netherlands                         
2802 TN
Rob Heij
voorzitter.edn@gmail.com
Website: www.ectodermaledysplasienederland.eu

SPAIN

Fundaluce, Spanish Fighting Blindness Foundation
Montera 24 4ºº J                     Madrid  Spain                      
28013
Jose María Casado
Andres Mayor
Andres@retinosis.org
Note: this association is primarily intended for patients affected by Congenital hypotrichosis with juvenile macular dystrophy and Ectodermal dysplasia, with ectrodactyly and macular dystrophy.

TURKEY

Ectodermal Dysplasia Group
University of Dicle, Faculty of Dentistry and Medicine
Diyarbakir
21280 Turkey
Izzet Yavuz 
iyavuz@dicle.edu.tr, izzetyavuz@hotmail.com 
Website: www.ektodermaldisplazi.com 

UNITED KINGDOM

Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham, Glos.
England
GL53 9EA
Diana Perry
Sue Atkins 
sue@ectodermaldysplasia.org 
Website: www.ectodermaldysplasia.org