AUSTRIA

Patient group Ichthyosis Austria
Wolfgang Bachler
Wolfgang.bachler@huter.at
Note: this association is primarily intended for patients affected by all forms of keratinization disorders except for Hailey-Hailey disease, Darier disease and pachyonychia type 1 and 2. 

BELGIUM

ELA Belgium (European Leukodystophie Association - Belgium)
25 rue de Haneffe
Verlaine
Belgique
4537
Gael de Miomandre 
gdm@ela.be 
Website: www.ela.be 
Note: this association is primarily intended for patients affected by Refsum disease.

Ichthyosis Belgium npa
Vestinglaan 12 - 2
Antwerpen - Anvers - Antwerp
Belgium
B-2640
Jean Devidts 
ichthyosis@devidts.com 
Website: http://www.devidts.com/ichthyosis 
Note: this association is primarily intended for patients affected by all forms of keratinization disorders except for Hailey-Hailey disease, Darier disease and pachyonychia type 1 and 2.

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
FIN-00520 Helsinki
Finland 
harvinaiset.ihosairaudet@iholiitto.fi 
Website: www.iholiitto.fi 

GERMANY

Ichthyosis Support Group Germany
Neue Kastanienallee 2
Mittenwalde
Germany
D-15749
Barbara Kleinow
Geske Wehr 
europe@ichthyose.de 
Website: www.ichthyose.de 
Note: this association is primarily intended for patients affected by all forms of keratinization disorders except for Hailey-Hailey disease, Darier disease and pachyonychia type 1 and 2.

ITALY

AAISMME Associazione Italiana Studio Malattie Metaboliche Ereditarie
Italian Association for the Study of Inborn Errors of Metabolism
Via G. Berchet, 16
Padova
Italy
35131
Cristina Vallotto
Manuela Pedron 
info@aismme.org 
Website: www.aismme.org 
Note: this association is primarily intended for patients affected by Refsum disease and X-linked ichthyosis.

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello 
info@lemalattierare.org 
Website: www.lemalattierare.org 

UNITI - Unione Italiana Ittiosi
Viale Vasco de Gama, 72
00121 Roma
Italia
Flavio Minelli 
flavio@ittiosi.it 
Website: www.ittiosi.it 
Note: this association is primarily intended for patients affected by all forms of keratinization disorders except for Hailey-Hailey disease, Darier disease and pachyonychia type 1 and 2.

SPAIN

Fundaluce, Fundación Lucha Contra La Ceguera
Fundaluce, Spanish Fighting Blindness Foundation
Montera 24 4ºº J
Madrid
Spain
28013
Jose María Casado
Andres Mayor 
Andres@retinosis.org 
Website: http://fundaluce.org 
Note: this association is primarily intended for patients affected by Refsum disease.

SWEDEN

Iktyosföreningen
Swedish Ichthyosis Association
c/o Gånemo
Gånarpsvägen 335
Munka Ljungby
SE-266 92
Agneta Gånemo 
ab.ganemo@lm.lrf.se 
Website: www.iktyos.nu 
Note: this association is primarily intended for patients affected by all forms of keratinization disorders except for Hailey-Hailey disease, Darier disease and pachyonychia type 1 and 2.

UNITED KINGDOM

Climb: Children Living with Inherited Metabolic Diseases
Climb Building, 176 Nantwich Road
Crewe
United Kingdom
CW2 6BG
Steven Hannigan 
info@climb.org.uk 
Website: www.climb.org.uk 
Note: this association is primarily intended for Chanarin-Dorfman Syndrome, CHILD, and Refsum disease.

Ichthyosis Support Group
PO Box 7913
Reading
UK
RG6 4ZQ
Ray Rowley 
isg@ichthyosis.org.uk 
Website: www.Ichthyosis.org.uk 
Note: this association is primarily intended for patients affected by all forms of keratinization disorders except for Hailey-Hailey disease, Darier disease and pachyonychia type 1 and 2.