AUSTRIA
Department of Dermatology
Innsbruck Medical
University
Anichstr. 35
A6020
Innsbruck
Austria
Prof. Matthias Schmuth
Dr. Robert
Gruber
r.gruber@uibk.ac.at
Outpatient clinic for Genodermatoses or rare
diseases
FRANCE
Dermatology department
Institution Institut Gustave
Roussy
39, rue Camille Desmoulins
94805
Villejuif
France
Dr. Caroline Robert
Outpatient
clinic for Xeroderma pigmentosum
Department of Dermatology
University hospital
1 pl
alexis Ricordeau
44093 Nantes
France
Prof. JF
Stalder
Dr. Sébastien Barbarot
sebastien.barbarot@chu-nantes.fr
Outpatient clinic for Genodermatoses or rare
diseases
Outpatient clinic for Pediatric
dermatology
Department of Dermatology and Pediatric Dermatology,
National reference centre for rare skin diseases
CHU de
Bordeaux
Hôpital Pellegrin Enfants, Place Amélie Raba
Léon
Bordeaux
France
33076 cedex
Prof. Alain Taïeb
alain.taieb@chu-bordeaux.fr
Outpatient clinic for Genodermatoses or rare
diseases
Outpatient clinic for Pediatric
dermatology
Laboratoire de Biochimie Hormonale et Génétique
Hôpital
Bichat
46 rue Henri Huchard
75018 Paris
France
Dr.
Nadem Soufir
Angelique Riffault
biob.sec@bch.aphp.fr
Outpatient clinic for Xeroderma Pigmentosum
MAGEC centre, Dermatology department
Necker Enfants
Malades Hospital, Assistance Publique
149 rue de
Sèvres
Paris
75015 France
Prof. Bodemer Christine
Christine.Bodemer@nck.aphp.fr
Outpatient clinic for Genodermatoses or rare
diseases
Outpatient clinic for Pediatric
dermatology
Service de Dermatologie
Hôpital Archet 2
BP
3079
06202 Nice Cedex
France
Prof. Jean Paul
Ortonne
Prof. Jean Philippe Lacour
lacour@unice.fr
Outpatient clinic for Pediatric
dermatology
GERMANY
Department of Dermatology and
Venerology
Georg-August-University
Goettingen
von-Siebold-Strasse 3
37075
Goettingen
Germany
Prof. Steffen Emmert
semmert@gwdg.de
Outpatient clinic for DNA-Repair
disorders
Department of Dermatology, Venerology and
Allergy
Charitéplatz 1
Berlin
10117 Germany
Prof. Ulrike Blume-Peytavi
Dr. Karola Stieler
karola.stieler@charite.de
Outpatient clinic for DNA-Repair Disorders
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric Dermatology
Hautklinik am Universitätsklinikum Freiburg
Hauptstraße 7
79104 Freiburg
PD Dr. Markus Braun-Falco
braun-falco@haut.ukl.uni-freiburg.de
Outpatient clinic for genodermatoses and rare skin diseases
Outpatient clinic for Pediatric Dermatology
Tomesa Fachklinik Bad Salzschlirf
Riedstr. 18
36361 Bad Salzschlirf
Dr. M.-L. Preil
preil@tomesa.de
Rehabilitation and outpatient clinic for genodermatoses and rare skin diseases
Rehabilitation and outpatient clinic for Pediatric Dermatology
HUNGARY
Dept. of Dermatology, Venerology and Dermatooncology
Semmelweis University
Mária str. 41
Budapest
H-1085 Hungary
Prof Sarolta Kárpáti
Dr. Marta Medvecz-Csikós
csimar@bor.sote.hu
Outpatient clinic for Genodermatoses or rare diseases (Xeroderma
pigmentosum)
Outpatient clinic for Pediatric Dermatology (Xeroderma
pigmentosum)
IRELAND
Department of Dermatology
Our Lady's Hospital for Sick
Children
Crumlin
Dublin
Ireland
Dublin 12
Dr.
Alan Irvine
airvine.sec@olhsc.ie
Outpatient clinic for DNA-Repair
Disorders
ITALY
ARS RADIOLOGICA s.r.l.
Piazza N. Sauro, 6
Ruffano (LECCE)
73049 ITALY
Dr. Alessandro Castriota Scanderbeg
scanderbeg@arsradiologica.com
Radiologic diagnosis of genetic diseases
Centro per le malattie cutanee ereditarie
Istituto di
Scienze Dermatologiche - Università di Milano
Via Pace
9
20122 Milano
Italy
Dr. Gianluca Tadini
gtadinicmce@unimi.it
Outpatient clinic for Genodermatoses or rare
diseases
Department of Specialistic and Experimental Clinical
Medicine, Division of Dermatology
University of Bologna
via Massarenti 1
Bologna
40138 Italy
Prof. Annalisa Patrizi
Dr. Iria Neri
irianeri@aosp.bo.it
Outpatient clinic for Genodermatoses or rare diseases (Trichothiodystrophy,
Xeroderma pigmentosum)
Dipartimento di scienze dermatologiche
Via della Pergola, 58
Florence
50121 Italy
Prof. Paolo Fabbri
fabbri@unifi.it
Outpatient clinic for Genodermatoses or rare diseases
U.O.C. di Dermatologia e Venereologia
Ospedale
Maggiore
Via Stuparich, 1
34125
Trieste
Italy
Prof. Giusto Trevisan
Dr. Patrizia
Vidimari
trevisan@units.it
Oncologic clinic for Xeroderma pigmentosum
VII Division of Paediatric Dermatology
Istituto
Dermopatico dell'Immacolata, IDI-IRCCS
Via dei Monti di
Creta 104
00167 Rome
Italy
Dr. Mauro Paradisi
Dr.
Corrado Angelo
c.angelo@idi.it
Outpatient clinic for Genodermatoses or rare
diseases
SWEDEN
Department of Dermatology - Genodermatosis
Centre
Uppsala University
Hospital
Uppsala
Sweden
SE-751 85
Prof. Anders
Vahlquist
Anders.Vahlquist@medsci.uu.se
Outpatient clinic for Genodermatoses or rare diseases
(for Trichothiodystrophy)
SWITZERLAND
Service de Dermatologie et Vénéréologie
CHUV / FBM -
UNIL
Hôpital de
Beaumont
Lausanne
Suisse
1011
Prof. Daniel
Hohl
Pascale Sellem
pascale.sellem@chuv.ch
Outpatient clinic for Genodermatoses or rare
diseases
Outpatient clinic for Pediatric
dermatology
THE NETHERLANDS
Dermatology
University Medical Centre
Groningen
Hanzeplein 1
Groningen
the
Netherlands
9700 RB
Prof. Marcel F. Jonkman
m.f.jonkman@derm.umcg.nl
Outpatient clinic for Genodermatoses or rare
diseases
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