AUSTRIA

Dept. of Paediatrics/ Neonatology
Medical University Innsbruck
Anichstr. 35
Innsbruck
6020 Austria
Prof. Holm Schneider 
holm.schneider@uibk.ac.at 
Outpatient clinic for Epithelial Adhesion Disorders (Epidermolysis bullosa dystrophic, Hallopeau-Siemens, Epidermolysis bullosa junctional, Herlitz and non-Herlitz types)

Salzburger Landeskliniken
Molecular Dermatology/eb-house austria
Müllner Hauptstraße 48
Salzburg
AUSTRIA
5020 Salzburg
Dr. Johann Bauer
Julia Velagic 
J.Velagic@salk.at 
Outpatient clinic for Epithelial Adhesion Disorders

CZECH REPUBLIC

Department of Pediatric Dermatology the 1st Pediatric Clinic
University Hospital Brno
Cernopolní 9
625 00 Brno
Czech Republic
Dr. Hana Buckova 
hbuckov@fnbrno.cz 
Outpatient clinic for pediatric dermatology 

FRANCE

Department of Dermatology
University hospital
1 pl alexis Ricordeau
Nantes
France
44093
Pr JF Stalder
MD Sébastien Barbarot 
sebastien.barbarot@chu-nantes.fr 
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric dermatology

Department of Dermatology and Pediatric Dermatology, National reference centre for rare skin diseases
CHU de Bordeaux
Hôpital Pellegrin Enfants, Place Amélie Raba Léon
Bordeaux
France
33076 cedex
Prof. Alain Taïeb 
alain.taieb@chu-bordeaux.fr 
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric dermatology

Department of Medical Genetics
Purpan Hospital
Pavillon Lefebvre
Toulouse
France
31024
Prof. Alain Hovnanian 
alain.hovnanian@toulouse.inserm.fr 
Outpatient clinic for Genodermatoses or rare diseases

MAGEC centre, Dermatology department
Necker Enfants Malades Hospital, Assistance Publique
149 rue de Sèvres
Paris
75015 France
Prof. Bodemer Christine 
Christine.Bodemer@nck.aphp.fr 
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric dermatology

Service de Dermatologie
Hôpital Archet 2
BP 3079
06202 Nice Cedex
France
Prof. Jean Paul Ortonne
Prof. Jean Philippe Lacour 
lacour@unice.fr 
Outpatient clinic for Epithelial Adhesion Disorders

GERMANY

Department of Dermatology
University Medical Center Freiburg
Hauptstraße 7
79104 Freiburg i. Br.
Germany
Prof. Leena Bruckner-Tuderman
Daniela Kirstein 
eb-zentrum@haut.ukl.uni-freiburg.de 
Outpatient clinic for Epithelial Adhesion Disorders

Department of Dermatology, Venerology and Allergy
Charitéplatz 1
Berlin
10117 Germany
Prof. Ulrike Blume-Peytavi
Dr. Karola Stieler 
karola.stieler@charite.de  
Outpatient clinic for Epithelial Adhesion Disorders
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric Dermatology

Hautklinik am Universitätsklinikum Freiburg
Hauptstraße 7
79104 Freiburg
PD Dr. Markus Braun-Falco
braun-falco@haut.ukl.uni-freiburg.de
Outpatient clinic for genodermatoses and rare skin diseases
Outpatient clinic for Pediatric Dermatology

Tomesa Fachklinik Bad Salzschlirf
Riedstr. 18
36361 Bad Salzschlirf
Dr. M.-L. Preil
preil@tomesa.de
Rehabilitation and outpatient clinic for genodermatoses and rare skin diseases
Rehabilitation and outpatient clinic for Pediatric Dermatology

HUNGARY

Dept. of Dermatology, Venerology and Dermatooncology
Semmelweis University
Mária str. 41
Budapest
H-1085 Hungary
Prof Sarolta Kárpáti
Dr. Marta Medvecz-Csikós 
csimar@bor.sote.hu 
Outpatient clinic for Epithelial Adhesion Disorders

IRELAND

Department of Dermatology
Our Lady's Hospital for Sick Children
Crumlin
Dublin
Ireland
Dublin 12
Dr. Alan Irvine 
airvine.sec@olhsc.ie 
Outpatient clinic for Epithelial Adhesion Disorders

ITALY

Centro per le malattie cutanee ereditarie
Istituto di Scienze Dermatologiche - Università di Milano
Via Pace 9
20122 Milano
Italy
Dr. Gianluca Tadini 
gtadinicmce@unimi.it  
Outpatient clinic for Genodermatoses or rare diseases

Chirurgia Plastica e Ricostruttiva
Università degli Studi di Foggia
Viale Pinto
71100 Foggia
Italy
Prof. Aurelio Portincasa
Prof. Domenico Parisi 
d.parisi@unifg.it 
Outpatient surgical clinic for Epithelial Adhesion Disorders

Department of Specialistic and Experimental Clinical Medicine, Division of Dermatology
University of Bologna
via Massarenti 1
Bologna
40138 Italy
Prof. Annalisa Patrizi
Dr. Iria Neri 
irianeri@aosp.bo.it 
Outpatient clinic for Genodermatoses or rare diseases (Epidermolysis bullosa dystrophic, dominant, Epidermolysis bullosa dystrophic, pretibialis & pruriginosa, Epydermolysis bullosa junctional, Herliz, Epidermolysis bullosa simplex, Dowling-Meara, Epidermolysis bullosa simplex, Weber-Cockayne, Epidermolysis bullosa simplex, with muscular dystrophy, Kindler syndrome).

Dipartimento di scienze dermatologiche
Via della Pergola, 58
Florence
50121 Italy
Prof. Paolo Fabbri
fabbri@unifi.it
Outpatient clinic for Genodermatoses or rare diseases

VII Division of Paediatric Dermatology
Istituto Dermopatico dell'Immacolata, IDI-IRCCS
Via dei Monti di Creta 104
00167 Rome
Italy
Dr. Mauro Paradisi
Dr. Corrado Angelo 
c.angelo@idi.it 
Outpatient clinic for Genodermatoses or rare diseases

SWEDEN

Department of Dermatology - Genodermatosis Centre
Uppsala University Hospital
Uppsala
Sweden
SE-751 85
Prof. Anders Vahlquist 
Anders.Vahlquist@medsci.uu.se 
Outpatient clinic for Genodermatoses or rare diseases

SWITZERLAND

Service de Dermatologie et Vénéréologie
CHUV / FBM - UNIL
Hôpital de Beaumont
Lausanne
Suisse
1011
Prof. Daniel Hohl
Pascale Sellem 
pascale.sellem@chuv.ch 
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric dermatology

THE NETHERLANDS

Department of Dermatology
University Medical Centre Groningen
Hanzeplein 1
Groningen
the Netherlands
9700 RB
Prof. Marcel F. Jonkman 
m.f.jonkman@derm.umcg.nl 
Outpatient clinic for Epithelial AdhesionDisorders
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric dermatology

UNITED KINGDOM

Centre Cutaneous Research
Barts/London SMD/QMUL
4 Newark St
London E1 2AT
UK
Dr. Edel O'Toole 
e.a.o'toole@qmul.ac.uk 
Outpatient clinic for Genodermatoses or rare diseases 

Genetic Skin Disease Group
St John's Institute of Dermatology
St Thomas' Hospital Lambeth Palace Road
London SE1 7EH
UK
Prof. John McGrath
Dr. Jemima Mellerio 
jemima.mellerio@kcl.ac.uk 
Outpatient clinic for Epithelial Adhesion Disorders
Outpatient clinic for Genodermatoses or rare diseases
Outpatient clinic for Pediatric dermatology